How to Die: Simon's Choice
Review
of the BBC2 documentary shown on Wednesday 10 February
2016.
On
Wednesday 10 February, BBC2 broadcast the 90-minute
documentary, How to Die: Simon’s Choice. It
was the story of Simon Binner and his decision to commit
assisted suicide at the so-called Eternal SPIRIT
Foundation ‘clinic’ in Basel, Switzerland.
Simon Binner the man
Simon, by his own admission, was an alpha-male. He
was a Cambridge graduate, affluent, sporty, fun-loving,
articulate, quick-witted and a strong-minded business
man. He was married to Deborah and had three
step-daughters, Zoe, Hannah and Chloe – the latter had
died from bone cancer in 2013, a month before her 18th
birthday. Outwardly, it was a happy, well-off family
– inwardly, it was already acquainted with tragedy.
That heartbreak was ratcheted up in early 2015, when Simon
was diagnosed with an aggressive form of motor neurone
disease (MND) and a prognosis of between 6 and 24 months.
Simon, we learn, had decided in the car on his way back
home from the hospital diagnosis on 7 January 2015 that he
would either kill himself or be euthanized. He is
hugely frustrated. He can speak four languages, but
not for long. He can play with his grandson, but not
for long. He can walk and talk, but not for
long. The issue of palliative care is raised, ‘I’m
not doing that. I’ll chose a date.’ And he
does – his 58th birthday, Monday 2 November. And so
he begins to make the arrangements. He even
announces his pending death plans on LinkedIn.
Simon Binner the patient
On the other hand, Deborah has ‘… always been quite
anti-assisted dying.’ In fact, she is ‘utterly
terrified of it.’ From the beginning she, ‘feels so
strongly that this isn’t the right thing to do.’ But
she confesses that she and Simon, ‘Don’t, can’t talk about
it.’
Enter, Dr Erika Preisig, vice-president of the Eternal
SPIRIT Foundation, which she established in the summer of
2011 to deliver an AVD, an assisted voluntary death.
She demonstrates her method. ‘This is the
medication’ she blithely understates as she shows us the
bottle containing the lethal ‘30 times the normal dose of
anaesthetic’, which allows the patient ‘to fall asleep
within 30 seconds’ and ‘within 4 minutes’ she informs us,
‘the heart stops beating and they are dead.’
Simon and she correspond and she grants an initial
approval for his assisted suicide. Meanwhile, we are
taken to various gatherings of Simon and his long-standing
friends. Their united message is that Simon has ‘not
thought it through’ and that ‘he is going too soon.’
They agree that he has a tendency for the big gesture and
his stubbornness about that fixed date is so typical of
the man. Simon admits that he now feels vulnerable,
but a few minutes before we had heard him accepting that
the vulnerable must never be pushed into assisted
suicide. But he now affirms, 'I am in a different
category, I have thought it through and I want to
die.’ His exasperated wife exclaims, ‘The things you
bloody put me through!’
Simon Binner the dying
In September 2015, Simon begins to deteriorate fast.
He can no longer walk his beloved dog, Ralph, and he now
employs a care worker to shower and dress him.
Surveying his lot, he writes in his large notebook,
‘Humiliation. Helplessness. And above all
UNMANLY.’ Despite the anguish, Simon admits that,
‘Debbie is adamant she wants me to stay. She is
incredibly loving to me but refusing to accompany me to
Switzerland.’ Debbie declares to camera, ‘I cannot
take him to Basel. One, I don't think it's the right
thing to do, and two – and most importantly – I don't
believe he really wants to go.’ It now, at last,
begins to dawn on Simon that he has other responsibilities
– it’s not all about him. He even hints at
reconsidering his decision, but no, he remains obdurate.
The film pauses to record the 11 September debate in the
House of Commons of Rob Marris’ Assisted Dying (No. 2)
Bill 2015-2016. It was eventually defeated by 330
votes to 118. Any hopes of legalising assisted
suicide in the UK were dashed. Danger had been
averted, good medicine had been reinstated, the vulnerable
had been protected.
By 4 October, Simon is in a wheelchair. By 9
October, he can feel his hands going and soon it will be
his last chance to communicate by writing. On 12
October, he tries to hang himself. It is a pivotal
event. He now wants to go to Basel earlier than
planned, on 16 October. This is not possible, but
the Eternal SPIRIT Foundation arranges for his last day to
be Friday 19 October.
He has a small farewell lunch party on the previous
Friday. Simon has had enough. Debbie concedes,
‘I feel furious, tender, loving, protective, so pleased I
married him and I will miss him terribly.’ Simon
writes, ‘I’m VERY glad I met Deb.’ His mother
pluckily resigns herself, ‘I can’t get another son, can
I?’
The following Sunday, Simon, Debbie and a few friends fly
out to Basel. We cut to Alison Saunders, the UK’s
Director of Public Prosecutions, who explains the current
law on assisted suicide – up to 14 years imprisonment for
anyone who ‘... aids, abets, counsels or procures the
suicide of another’, but probably nothing if it is done
‘compassionately’. Simon and his wife are visited by
a second Swiss doctor, who rehearses the procedure and
confirms the persistence of Simon’s wish.
Simon Binner the dead
The fateful Monday arrives. At the ‘clinic’, there
is additional form-filling. Dr Preisig explains that
even when the ‘medicine’ drip is set up, Simon can still
change his mind and go home. But, because it is an
‘assisted’ death, he himself must open the drip valve and
to prove his actions to the Swiss authorities, his last
moments will be filmed. Simon plays a recorded final
message to Debbie, his wife of 14 years, ending with,
‘Anyway, time and tide wait for no man, I love you very
much Debbie. Goodbye.' At 9.38 am, he then,
with a smile on his face, moves the drip valve to
‘open’. Debbie and four friends, but not Hannah or
Zoe, witness it all. Rather than show the corpse,
apparently cut from the original film because of pressure
on the BBC from The Samaritans, the camera fades to a
black screen. We next see a coffin being loaded into
a Fiat limousine.
Debbie is interviewed two weeks later. She has
forgotten huge chunks of what happened in
Switzerland. But she recalls some tender little
episodes – how she loved putting his cufflinks on and
making sure his shoes were done up properly. But she
acknowledges that she is still in shock and trauma.
She is angry, missing him and guilty. ‘Did I do
enough?’, she repeatedly asks herself.
The conclusions
‘Poignant’ is perhaps a good word to describe this
documentary. To be fair, it was not overtly
championing assisted suicide, though its very broadcast
could be construed as such. There is a fear that
such a film could 'normalise' assisted suicide, especially
as it contained so little about the positive alternatives
of hospice and palliative care. Assisted suicide
should be countered, not advertised. The BBC has
previously, in 2011, been criticized as a 'cheerleader for
assisted suicide' after screening Choosing to Die,
a documentary fronted by the vocal supporter, Sir Terry
Pratchett. Other sensible arguments come from
terminally-ill and disabled people, who fear that such
documentaries create an atmosphere of fear and
hopelessness, so that suicide is regarded as a proper
‘treatment’ for their conditions.
Motor neurone disease (MND) is horrid. It is a
fatal, rapidly progressing disease that affects the brain
and central nervous system. There are about 5,000
sufferers in the UK – six are diagnosed every day and six
die every day. There is no cure, but there is
compassionate end-of-life care. Simon understood the
former, but disdained the latter.
Yet How to Die: Simon’s Choice was undoubtedly
moving – dying and death always are. Here was a
terminally-ill patient, who was determined to play the
autonomous man and to take his own life. That was
his first mistake. His second was to refuse
palliative care. His third was to discount his wife,
family and friends. As with all suicides, it is
those left in the aftermath who suffer most, theirs is the
emotional toll. Their bereavement is invariably
hard. The Binner family needs to grieve well – I
hope they can do just that. In a recent conversation
with a The Daily Telegraph journalist, Deborah
Binning said, 'I would still have preferred him not to
go. There is a beauty in caring for someone who is
dying. I loved Simon, I would have loved to nurse
and cherish him to the end. Campaigners for assisted
dying underestimate how terrible it is for those of us
left behind – I know
I am not the only one still traumatised by Simon’s
choice.'
So, is assisted suicide ever the answer to tragic medical
circumstances? Never. Those who believe
otherwise and insist on going to Switzerland to die are a
peculiar set of people, a true minority – there are only
about 25 each year from the UK, compared with the 500,000
or so people who die here naturally. They are so
often the strong-minded, eloquent and relatively
rich. They are unlike the rest of us. Indeed,
they deem themselves different. They want special
service. Suffering is not for them. And they
are typically agnostic, if not entirely atheistic – God
has no place in their world, their lives, or their deaths.
How to Die: Simon’s Choice was watched by some 1.2
million people. That is not many considering its
widespread publicity and potential number of
viewers. Only a handful of complaints were received
by the BBC. Is the British public really so
disinterested in these matters of life and death? Or
is assisted suicide just so unnatural and so unwatchable?